Cancer Success Story – Mrs. Rashi Kapoor

 I am Rashi Kapoor, 38 years old , a synovial sarcoma survivor.Sarcoma is a very rare type of cancer.As per. Survey , it happens to one in a million.Life has not been perfect for me as cancer has jolted me physically, emotionally, mentally twice.It has hit me 5 years back with molar pregnancy which is a type of cancer.I underwent chemotherapy in AIIMS and my case was handled well by the doctors in AIIMS. But last year in June 2016,  I was diagnosed with another cancer called as synovial sarcoma.I had pain in my knee from last 6 years but I kept ignoring as I was working as a mathematics teacher and my priority was my family.A stage came when I was unable to bend my knee .I consulted various orthopaedic doctors who advised me to go for x-ray and MRI of right knee.All the doctors gave their own diagnosis.I kept eating all the pain killers, did hot water fermentation, went for physiotherapy for almost 6 months.When I did not get any relief in terms of pain, swelling and bending of knee was becoming difficult day by day, my gait pattern that is way of walking also got affected.i started limping.i kept visiting orthopaedic doctors in NCR .They suggested me to go for arthroscopy which is a surgery and performed biopsy on me .My blocks were collected and sent to pathology lab for testing.They diagnosed that it is spindle cell proliferation. My blocks were also submitted in AIIMS. The histopathology report declared that I had synovial sarcoma.i had never heard of sarcoma earlier.i happened to meet sarcoma specialist , Dr Sameer Rastogi, associate professor in AIIMS , IRCH …
He explained to me that I was suffering from cancer. I was shattered completely as all negative thoughts were coming to my mind.Lot of questions were coming to my mind like what will happen to my family especially my two lovely kids Aarit and Rhea who were just 9 years and 1 year at that time .I was advised by Dr Sameer Rastogi to go for X-ray, MRI, 2 d echocardiography and X-18 test .X-18 test is a test which confirms that a person has sarcoma.In my case, that test was positive .Since sarcoma is a very rare type of cancer, there are few doctors all over India who treat it.i was advised to go for surgery, chemotherapy and radiation.Facing this treatment was the toughest part of my life.My case was extremely complicated and various doctors suggested me amputation.I was completely shattered with a thought of amputation at that age of 38.i did not want to be dependent on anyone.I went to Mumbai to meet Dr Ashish Gulia in TATA memorial hospital.Looking at all my reports and scans he performed a surgery on me .He did arthrodesis…it is a surgery done in a way where a complete rod from hip to ankle has been inserted.The result is that I am unable to bend my knee .It is completely straight now.It was very difficult for me to imagine a life where one leg is completely straight.So many questions came to my mind like how will I walk? How will I lead my rest of the life? Will I have to depend on someone to go to bathroom? But it is rightly said that when going get tough, the tough get going.i started valuing my life more.i have emerged out as a stronger person now.Earlier I used to crib over small things in life but now I am grateful about the fact that I am alive.My mindset has changed completely .i count my blessings and have developed an attitude of gratitude.The toxic treatment of cancer not only jolts the patient but it it also jolts the family members who are care givers to a patient.So the role of care givers is equally important.During my illness , my family that is my husband, Mr adhir Kapoor, my father in law, Mr Azad Kapoor and my two lovely kids Aarit and Rhea were my pillar of strength.I am greatful to God for blessing me with a family who did all possible efforts to make me survive.It was very difficult for us to get the surgery done from Mumbai as we had no support system, kids were very young and had no idea about where to stay as we did not have any relatives in Mumbai .So my husband and father in law , aunt took me to Mumbai and kids were managed by my mother and other family members.i will remain greatful to all of them for supporting me at that time. People get scared when they are diagnosed with cancer but I want to tell everyone that cancer is not the end of life.If you keep your will power strong , train your mind to see the good in every situation and have an optimistic approach in life, you can live your life to the fullest.When my treatment was going on , I used to do yoga as yoga gave me lot of mental strength to remain calm and cultivated the habit of gardening and reading positive thinking books.Taking care of plants, watering them, nurturing them helped me to control negative thoughts coming to my mind.After my surgery was done, I started walking with the help of Walker.Slowly and slowly I started walking with the help of stick.After some more practice I started to walk without any stick or Walker.I have become independent now.I do cooking in the kitchen, prepare meals for my family, go and attend my son’s PTM in school , take my daughter to park.
After my surgery , I was advised to go for chemotherapy and radiation.My radiation was done from Fortis hospital Noida.i had to go and take radiation sittings for 30 working days.After radiation, I was advised to go for chemotherapy.Chemotherapy is the toughest part of a cancer Treatment as it is only the patient who has to go through the toxic treatment of chemotherapy.It is very difficult as lot of side effects happen during chemotherapy sessions.Although it depends from person to person about side effects faced by a patient.The worst part of chemotherapy treatment is having a hair fall.I had long, beautiful and silky hair but I turned bald due to toxic nature of chemotherapy drugs.i was given ifosomide drug  and had to go through five cycles of chemotherapy. During my chemotherapy cycles I faced many side effects like constipation, mouth ulcer, fever because of low immunity and vomiting . I also purchased a wig of artificial hair from sheen wigs, Karol Bagh and wear it whenever I used to go out.
The drugs given during chemotherapy makes you mentally , emotionally and physically weak. It affected my taste buds too.I used to have sweet tooth as only sweet things like halwa, porridge were eaten by me.But now after facing the entire toxic treatment I have emerged out as a stronger person. My hair have also come after the treatment got over.  i have started believing the fact that nothing is permanent in this world not even our troubles.I have started celebrating each day.i am happy and thankful about that fact that I am alive.During my treatment was going on , I promised myself and my God that if I survive ,I will help other people, other cancer patients specially those affected by sarcoma as it is a very rare type of cancer.I promised myself that since I am alive and able to walk as Dr Ashish Gulia has saved my limb, I will walk for the welfare of others. I will make difference to someone’s life.I met several other like minded people in a seminar on sarcoma organised by Dr Sameer Rastogi on 5 March 2017 .The chief guest of that seminar was Dr Rath. It was a very interactive meeting where all doctors, sarcoma specialists, medical oncologists , dieticians , radiation oncologist and surgeons were there along with patients undergoing treatment, survivors and caregivers.We formed a group of 8 enthusiastic people who wanted to make difference in sarcoma care in India.We mutually decided to name our society as Sachin sarcoma society.It is a registered society whose mission is to spread awareness of sarcoma , build companionship with sarcoma affected families.All the members of this society are affected by sarcoma in some or the other way. Our vision is to remove the fear of sarcoma .The aim is to instil hope , faith in every sarcoma patients life  to survive by love , care and empathy and our good deeds. I would like to express my sincere gratitude to Dr Ashish Gulia for performing limb salvage surgery on me.i am able to walk because of him.i am grateful to Dr Sameer Rastogi for being our mentor, guide and helping us in every possible way to form this society.i am grateful to my husband Adhir for always being there with me, helping me to come out of it, supporting me in every possible way. Lastly , I would like to say that very little is needed to make a happy life, it is all within each one of us , in the way we think.
God bless!
(Before Operation)
(After Operation)

 

236 thoughts on “Cancer Success Story – Mrs. Rashi Kapoor”

    1. Thank you so much Dr Sameer Rastogi for all your good wishes, guidance and being our mentor.Sachin sarcoma society is formed because of you.. Wishing you all the best for all your future endeavours.

  1. The Sachin Sarcoma Society it’s a very good society it is giving a new hope to patients that they can fight with this disease and it give enthusiasm to patients also that everything is possible you just need to be positive in your life. If you feel positive and good from inside can you can beat anything in life and this society gives us the same feeling and motivation that we can do everything and we can also fight with every kind of disease.

    1. Thank you so much Rahul for all your good wishes..you are very optimistic person…be the way , you are…I pray for a long, healthy and happy life for you.

  2. Kudos to SSS.A lamp is lit to dispel the fears the sarcoma brings.It is said dat every journybegins by d frt sbegin by d frst small step…n dat step has been taken.Now we all have to wrk in tandem to achieve d desired.SSS is not hungry for name or fame ,bt generallygenuinely wish to help d needy ones.All d very best our SSS.

    1. Thanks a lot arzoo for all your good wishes…your re a fighter…god bless you with good health and happiness in life.

  3. Rashi di u are so powerful, u had gone through such a difficult treatment then also u were smiling and now u are trying to make the sad faces smile. I promise u when my treatment will be over I will also join u and meet the sarcoma patients and we will together make the rest of the sad faces smile.😊😉

    1. Thanks a lot Anushka for all your good wishes..be brave, strong and positive as a person to face the treatment courageously.

  4. I salute each one of you for this wonderful and purposeful initiative. I am sure your efforts and hardwork will make a difference to lives of multiple patients and there caregivers. I hope you guys succeed (beyond your own expectations) as far as achieving the objectives that you all have set out for yourselves and the Society!

    God bless!

    1. Thank you so much adhir for all your good wishes…you have always supported me, be it my illness or my passion towards making a difference in others life.Thank you for always supporting me and being there with me.wishing you all the very best.

    2. Thanks.a lot adhir for your kind words.Thanks for always supporting me in every way.you have always been there with me , be it my illness or my passion towards making difference in others life…I wish you all the very best for everything

    3. Thanks a lot adhir for all your support and good wishes…you have always been there for me..supported me in all the testing times…wish you good luck in life.

  5. Dear colleagues,
    First of all Congratulations to start this socity. It’s a great effort to all of you for taking the initiative to this important work and creating The Sachin Sarcoma Society. We all know there is a great need
    for this work.
    I am very proud to have you all here in this socity. You all are aware that from this socity all
    Informations, knowledge is important to the patients and the patient’s family – but is
    also very important to Doctors too.
    We all here share expertise and knowledge about treatment of pateint by doctors
    – and encourage the other pateint development of health services for doctors. We need to do research and develop healthy working environments for pateint. And we need to
    teach all to look after their own health. We all together do their best to run this Sachin Sarcoma Society. Regards – Bhushan Valecha (Father of Navya Valecha).

  6. Kudos Rashi
    Gratitude is the perfect form of life. Helping others is the best repayment. Nice to see that you have come out of your own fears and are bringing smiles to other fellow cancer patients. Good initiative Sachin Sarcoma Society

  7. What should I say for you, “Rashi” no words to describe your courage,your enthusiasm and your ever lasting spirit. You carry a heart of gold where 100 of Sarcoma patients live. Being gone through an unbearable pain, you stand like a pillar to support others and be like that only…….

    1. Thank you so much Arti for all your love and good wishes… Together we will defeat sarcoma ..I pray for along healthy and happy life for Ashman.

  8. Dear Rashi.
    You are not only a survivor but a fighter too.
    You have given such detailed information about your own case which will definitely help other patients and people for taking timely check ups.

    By joining this this awareness campaign you are making your time worthwhile.

    With best wishes.

    Kavita Chopra

    1. Thank you so much bua for your good wishes and blessings…I really want to make difference in others life…may god bless you with long, healthy and happy life.

  9. Dear Rashi words r very less to define your courage and enthusiasm.You have proved that a mother can even fight with god for her kids. After suffering from such a disease and tolerating all those Painful treatment u have proved that u r true fighter. After meeting u I realise that god has given us a beautiful life so enjoy each and every second of it and make other smile as u do. I always pray for a healthy and happier life for you. Always stay blessed and be strong. Love you 😀

  10. Rashi i am deeply touched by your story. You are a brave girl ,always smiling and very confident. I admire you from core of my heart and learning lesson from you as how to face difficult period with smile on your face. May God bless you with happiness and prosperity.

    1. Thank you so much uncle for all your love and blessings , prayers for me.i m really touched.regards to you and aunty.

  11. Dear Rashi mam ,
    I know you are stronger than cancer. You are a source of inspiration for us even as you faced this challenge and I’ve seen what you faced but you beaten up all the bad things. You are very strong and brave girl , hats off to you…. May God bless you with warm hug… keep smiling and stay blessed & healthy

    1. Thank you so much sir for all your good wishes…Thank you for teaching me how to do yoga as yoga has really helped me to come out of the toxic treatment of cancer.

  12. Dearest Rashi,
    Congratulations, your effort and initiative will enlighten the lives of many.I have seen you gracefully rising through thick and thin in life.You have always been admired for your strength and positive thoughts by many of us.Keep smiling always and I wish you great luck .

  13. Dear rashi,
    You are a courageous and optimistic girl…you are an inspiration for many cancer patients…you have gone through so much in life but you have come out of it as a stronger person by keeping a smile on your face and now trying to help other patients.God bless you for all your efforts.

  14. Dear Rashi,
    First I want to congratulate you for your success and efforts to enlighten the lives of many.You and your team is admirable for working for cancer patients. I’m deeply touched with your story.My best wishes are always with you.keep smiling…..

  15. Truly inspirational Ms Rashi. Wish you and group all the best and this would be one of the very few Patient support group in India which is of the patients, by the patients and for the patients

    1. Thank you so much Rena for your good wishes…it means a lot for us as we want to make difference in others life.

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