Hi all, myself Ashish Rana a caregiver to my Mother Kaushalya (46 year).
In June,2015 My mother had pain in her upper abdominal region for several days then we visited Medanta Hospital,Gurgaon and doctor suggested CT scan of abdomen which suggestive of multiple lesion in both lobes of Liver. Then we went for Liver Biopsy and diagnosed with Epithloid Hemangioendothelioma which is a type of sarcoma, very rare type of cancer which happens to one in a million. After this tough phase of life we decided to move further on positive note to fight from it without any negative thoughts and started with Thalidomide 50mg and Celecoxib 100mg.
After taking these medicines for 3 months my mother’s condition improved as there were no pain for 3 months but MRI suggestive of increased size of liver lesion. Then, We rushed to several hospitals i.e. AIIMS, Ganga Ram,Rajiv Gandhi,Max, ILBS, Apollo for opinion and came to know about Sarcoma Specialist Dr. Sameer Rastogi at AIIMS, Sarcoma Medical Oncology Centre and Started on Pazopanib 800mg/day from June,2016. After taking Pazopanib for several days my mother developed Hand Foot syndrome, elevated liver function test and high BP so dose was lowered to 400mg per day as pazopanib 800mg is not tolerated by every Indian patients. Then we went for PET Scan(Sept’16) after taking medicine for 3 months which shows Stable Disease.
Now, She is on Pazopanib 400mg/day plus Dr. Sameer added Propanolol 40mg/day(also used as hypertension medicine) because of recent evidence of this medicine in this disease and tolerating well and we visit Dr. Sameer in his OPD regularly to keep monitoring her health. Being a house wife she is living a healthy life without focusing on her disease and keep herself busy with her work without skipping yoga, meditation which helps a lot in healing disease and her latest PET Scan(Feb’2018) suggests Stable Disease.
Ever Smiling Mrs. Kaushalya Rana