Highlights
Global Expanded Access Program for ripretinib (DCC-2618) now open for GIST patients in countries, where no clinical trial with this medication is available. Details of the program are available through this web link: https://t.co/j2rj2VL4xY
What is Sarcoma?
Soft tissue sarcomas or Sarcoma are a diverse group of malignant tumours that originate when abnormal cells grow out of control in “soft tissues” and “connective tissues”. Soft tissues can be found in any part of the body and include muscles, tendons, fat, blood and lymph vessels, nerves and joint linings (synovial tissue). The type of sarcoma depends on the kind of cells it arises from. Connective tissues include all tissues that support, connect or separate different tissues in the body. Therefore it can be found in the structure of organs in the body (e.g., the uterus). Soft tissue sarcomas, therefore, can grow almost anywhere, but are most common in arms and legs (50%), followed by trunk and abdomen (40%), and head and neck (10%)
Our Mission
- Spreading Awareness on Sarcoma
- Building companionship with sarcoma affected families
- Helping improve the quality of life of people living with sarcoma
- Eradicating the fear of sarcoma
- Making difference in sarcoma care in India
Objectives
- Building a strong network of individuals who will work towards our mission
- Creating awareness about sarcoma and various types of sarcomas
- Sharing knowledge about sarcoma with the patients and their families
- Guiding patients for getting the required diagnostic tests viz. X-ray, CT scan, PET scan, etc. for timely detection
- Guiding patients to sarcoma specialists for surgery, radiation and chemotherapy
- Providing emotional support to patients and their families by providing required counselling
- Providing required administrative and logistic support to patients and their families
- Providing possible financial support in terms of consultancy, medicine or consumables to patients and their families
- Creating rehabilitation support for patients and survivors
We intend to achieve the above by the following methods
- Transmitting, Printing, Circulating and Distributing relevant information and knowledge to patients and their families through books, pamphlets, notices, pictures, periodicals, newspapers, magazines or any other mode on any matter related to sarcoma
- Use of audio-visual means and social media for implementation of the aims and objectives of the Society
- Organising meetings, workshops and seminars of expert doctors for patients and/or their family members
- Organising talk shows by expert doctors
- Approaching various corporate houses, government agencies, NGOs and public at large for their involvement in terms of physical efforts or financial support
- Seeking grants, donations, gift or legacy of moveable or immovable assets with or without conditions or support and assistance in any form for promoting the objects of the Society
Our Values
- Care: Be caring towards the needs of patients and their caregivers
- Courage: To provide emotional support and thereby instil courage in the patients and their caregivers
- Integrity: As the society is formed by survivors or caregivers all activities of the society will be carried out with integrity
- Hope: As hope helps one to see light inspite of all the darkness
- Attitude: A positive attitude will lead to a positive outcome
Together we can defeat cancer
Events @ Sachin Sarcoma Society
Support Group Meeting – 23rd November 2019
Sachin sarcoma society organised Sarcoma Support group meeting for sarcoma patients and caregivers to understand their concerns and help them in the best possible way on Saturday 23 November 2019.
Various Expert Doctors from AIIMS , New Delhi were invited as panelists to answer queries of patients in panel discussion.
Around 65 Sarcoma affected families participated .Various children who have sarcoma also came and participated in pot painting activity. Children’s day was celebrated with cake cutting.
Various survivors and caregivers have shared their experiences and boosted everyone’s morale. The sarcoma nurse also gave a presentation on how… Read more “Support Group Meeting – 23rd November 2019”
Sarcoma Support Group Meeting 21 September 2019
Sachin Sarcoma Society organised Sarcoma Support Group meeting on 21 September, 2019 at Hotel Bluestone, Kalkaji. It was attended by around 60 people.It was very inspiring to hear stories from all Sarcoma Patients, Survivors and Caregivers and they expressed their fears and apprehensions regarding the treatment. Many Sarcoma Children undergoing treatment participated wholeheartedly in drawing activity.
There was a great interactive session between Doctors and patients during Panel Discussion between Doctors and Patients.
All the patients and caregivers had a great networking with each other during lunch session.We express our gratitude to all the Doctors, Patients and Caregivers… Read more “Sarcoma Support Group Meeting 21 September 2019”
JOSH 2019 – Celebrating Life
Sachin Sarcoma Society organised an educational and fun filled event” JOSH 2019- Celebrating life ” on 28 th July 2019 in Indian Spinal Injury Centre Hospital to instill Hope, positivity and courage among patients as July is a Sarcoma Awareness month.The highlights of the program were panel Discussion between Doctors and patients and cultural performances by the sarcoma patients for the patients.
It was very motivating to hear survivor and caregiver stories from many patients and caregivers.
We are greatful to all the Doctors, Patients , Caregivers , Guests who came in good numbers and made this program… Read more “JOSH 2019 – Celebrating Life”
Support group Meeting – 23 March 2019
Sachin sarcoma society has organised Support Group Meeting on 23 March 2019 for sarcoma patients at AIIMS, New Delhi.
Support group meetings are conducted with the intent to support the patients emotionally fighting with disease and providing companionship to sarcoma affected families.It was heartening to see that patients came in good numbers ( around 50) and there was a great interactive session between doctors and patients and their queries were sorted out.
We express our immense gratitude to our mentor Dr. Sameer Rastogi, Dr. Sorun and Dr. Rakesh Garg and sister Parisa for counseling and guiding patients and… Read more “Support group Meeting – 23 March 2019”
2nd Sarcoma Support Group Meeting
The team of Sachin sarcoma society organised sarcoma support group meeting in Gurgaon on 17th November 2018 to motivate and inspire the patients of sarcoma undergoing treatment and to understand their concerns and challenges faced so as to help them in the best possible way. The entire session was very interactive and many survivors gave inspiring speeches which helped many other patients going through the cancer treatment. It gave them a ray of hope that they are not alone in this battle of cancer and their testing times are going to end soon. They have realised the power of BELIEF that… Read more “2nd Sarcoma Support Group Meeting”
Children’s Day Celebration
There are so many things that we can learn from children.They teach us how to remain happy without any reason.Their lovely smile and happiness steals our heart.They teach us how to live life to the fullest even though they are struggling from life. We are so happy to celebrate children’s day with all sarcoma kids to make their day special.All these kids are undergoing treatment of cancer but they have surprised us with their cheerfulness and never say die attitude. On account of children’s day , they have made beautiful sketches on happy children’s day. May God fulfil all their dreams… Read more “Children’s Day Celebration”
Blood Donation Camp
RAKT DAAN MAHAADAAN.
Blood donation service is the best social service to humanity.It is a very noble cause as by donating blood , one gets the opportunity to save someone’s life.All it takes is just 15 minutes to donate blood.By donating blood, one can bring happiness to someone’s life and make a difference in his life. Keeping this noble thought in mind, Sachin sarcoma society has organised its first blood donation camp in Faridabad on 12th November in association with AIIMS blood bank.We are happy that large number of people came forward to contribute for this noble cause and donated… Read more “Blood Donation Camp”
APMSTS Support Meeting, Jaipur
The team of Sachin sarcoma society have attended a prestigious international conference of APMST sarcoma support group meeting on 6 th October in Jaipur carrying 78 patients and caregivers from Delhi.We are immensely grateful to Dr. Ashish Gulia and the entire team of APMSTS for making all arrangements regarding travel and stay for our patients, survivors and caregivers. We are happy that all patients, caregivers and survivors have shown their faith on our team and there was so much of enthusiasm, vibrant and positive energy among the people. Many patients and caregivers have given marvellous dance performances, speeches on stage and… Read more “APMSTS Support Meeting, Jaipur”
First Sarcoma Support Group Meeting
As July is a sarcoma awareness month, a sarcoma support group meeting was organised in AIIMS on 21 July where 30 sarcoma affected families were invited.
We are immensely grateful to panel of doctors Dr. Sameer Rastogi, Dr. Venkatesan, Dr. Sushma Bhatnagar, Dr. Adarsh Barwad, Dr. Asid, Dr. Ramba of Sarcoma oncology department for coming and having interaction with patients of sarcoma and their caregivers.The fears and apprehensions of patients were heard by the doctors and they answered their queries.
It was followed by support group meeting with members of Sachin sarcoma society to understand their concerns and… Read more “First Sarcoma Support Group Meeting”
Sphoorti – Sarcoma Education Program
The team of Sachin Sarcoma Society organised it’s first major event Sphoorti – A Sarcoma Education Program held on 7th April, 2018 which focused especially on patients and caregivers to make them aware about the in’s and out’s of sarcoma and it’s effects. Our program was hosted at Hotel C.L. House, Yusuf Sarai who gave this venue free of cost to support this wonderful initiative and we are really thankful to Mr. C.L. Gupta for his immense support. The event was started with the welcome speech by the president of Sachin Sarcoma Society Mrs. Rashi Kapoor in which she invited… Read more “Sphoorti – Sarcoma Education Program”
Donate for a cause
Sachin Sarcoma Society welcomes your charitable contribution. Your gift will be used for the patients in need of assistance. Your valuable donation will help us grow sarcoma awareness in India. Thank You.
Our Facebook Feed
We are glad to share an informative Video on Rare tumor GIST by Dr Sameer Rastogi.
GIST are Gastrointestinal Stromal Tumors.
For any query and assistance, pl write to us
support@sachinsarcomasociety.org or call at our HELPLINE NUMBER 9667248800.
youtu.be/xfkcqm8xAsU
GIST Question and Answers with Dr. Sameer Rastogi
youtu.be
This interview taken by Mrs. Rashi Kapoor, President Sachin Sarcoma Society with Dr. Sameer Rastogi, Medical Oncologist, AIIMS New Delhi on the topic GIST ( ...Sachin sarcoma Society wishes everyone
#happythanksgiving.
We express our gratitude and thank all the Sarcoma Patients and Caregivers for giving us the opportunity to help them. We thank all the Doctors , Our supporters, Donors and collaborators for all their support to our cause.
Wishing you all a great life ahead!!
#Happythanksgiving
#sachinsarcomasociety
#patientsupportgroup
#beincelebrationwithlife
#warmgreetings
Sachin Sarcoma society organised Sarcoma Support Group meeting for Sarcoma Patients and Caregivers to instill Hope, Positivity and Courage among patients and help them in the best possible way.Various Children Suffering from sarcoma also participated wholeheartedly heartedly in Pot painting activity and Children's day was celebrated with them.
It was great to see enthusiasm between patients and caregivers. We express gratitude to all the Doctors who came as panelists and answered queries of patients and caregivers.We thank all the patients and caregivers for coming and attending the program. The panel discussion was a very interactive session between Doctors and patients.
We wish everyone all the very best !!
#sachinsarcomasociety
#patientsupportgroupmeeting
#CelebratingChildrensDay
#positivevibes
#instilinghope
#positivity
#sarcoma
In the News
Volunteer to Save Lives
As Sachin Sarcoma Society volunteer you can honour a survivor or a loved one lost to cancer, help save lives of people in your local community, and around the world. It only takes a little time to do a lot of good. Discover how rewarding it is to be a volunteer. Anyone with a keen interest in helping is encouraged to volunteer.
Next Steps...
You can reach out to us and can help us grow and spread the word of sarcoma